Monday, March 1, 2010

I need surgery. See my CSF leak

I'm bored, anxious, nervous, and getting stir crazy waiting for surgery. So I took a video of my leaking nose. It does this 24/7 ! I'm saturated with CSF fluid. I often feel like I am drowning. I suck it into my lungs at night while I try and sleep - my lungs burn.
I will get more confirmation on surgery date today but it looks like the 10th or 17th of March depending on scheduling of a little boy with a tumor.
One worry, doctor says if my brain dries out too much, (CSF cushion is too little) my brain could sag into my spinal column and that is NOT GOOD! Meningitis is also a risk but really not such a big of risk. So I stay semi-vertical as much as possible and drink a ton of liquids! I'll get back to beading and teaching when this major inconvenience is finally eliminated! Someone! Find a cure, Please! for Intracranial Hypertension! All my science students, past and present - this is a call for action!

1 comment:

Fame said...

after seeing this first hand, i don't need to watch the video! ugh! enjoy the movies and let me know if you need more alias!

   Feb. 2022 my grandparents: Grandpa Fryer at top, then Grandma Fryer followed by Grandpa and Grandma Bowen with their family in the bottom...