For those of us held down from carrying the burden of a medical condition called "Intracranial Hypertension", here is a web-site for a big fund raiser going on in September for this disease. I would LOVE for a cure in my lifetime - I say, "No more CSF leaks", no more headaches!
Every day, women, men and increasingly, children, are
diagnosed with intracranial hypertension.
They suffer with this "invisible" illness,
and battle the pain, vision loss, as well
as devastating financial and emotional impact.
Most feel that they are alone in their struggle.
But they are not.
IH Awareness Month is a TIME FOR HOPE AND FOR ACTION.
And...it is only 3 months away! This September,
please join us and make your own
personal pledge to spread the word about
intracranial hypertension and the need for research
to find better treatments and a cure:
www.ihrfoundation.org
Since now you know someone with it - ME!
I enjoyed a wonderful trip to Ireland because of new surgical techniques and new
drugs for my condition. I think there are many more out there who need to be
diagnosed and need treatment. Thank you to my doctors for finally getting
me back to a working condition!
(See archived posts in Mar 2010 to view my CSF leak caused by IH).
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