Thursday, March 25, 2010

I'm BACK! I no longer leak CSF fluid!

I'm home re-cooping from surgery at the U of U. (Love that hospital, they are soooo professional and efficient and knowledgeable and... most of all they seemed to have fixed me!)
Other than feeling like I was kicked in the face by a horse, I'm doing great.
Even my teeth hurt, along with a headache, nose stuffed full of who knows what, and no sense of smell what-so-ever.
Believe it or not I can handle all the pains and no smell power as long as I no longer drip.
SO...
Hopefully I can get some jewelry back on Ebay and Etsy in a few days and get my inventory down to a manageable level.
Look for some OUTSTANDING sale prices!
I'm not going to do any fairs or festivals this year.
I will only be selling on-line or from my home to help preserve my health.
I need to teach school at least one more year to make sure the Obama Health plan is up and fully functioning!
Can you believe I just may be able to retire now and actually purchase health insurance - it is unbelievable,
I am SO HAPPY!
Teachers (at least here in my area) no longer get health insurance when they retire yet we have a 30 year retirement plan.
I have 29 years in the system but with no health insurance and 8 years to go before any possible hope of Medicare,
I knew I was doomed.
What company, given the option, what provide health care insurance for a breast cancer survivor with chronic CSF leaks?
Who?
No matter what the cost!
(Which I do have limits on how much I can pay each month!)
So, I for one am so happy with the new health care plan that I just have to keep watching the news like it must be some joke!
I pay for roads I never drive on.
I pay for education for children I never conceived or reared.
So,
I thank all those who will pay into the larger insurance fund even though they may never need the insurance monies themselves so that people like me can have some peace of mind in my senior years and get some help with obtaining insurance
(not GIVING me free insurance - just helping ensure that I can purchase some!)
THANKS.

Monday, March 1, 2010

I need surgery. See my CSF leak

I'm bored, anxious, nervous, and getting stir crazy waiting for surgery. So I took a video of my leaking nose. It does this 24/7 ! I'm saturated with CSF fluid. I often feel like I am drowning. I suck it into my lungs at night while I try and sleep - my lungs burn.
I will get more confirmation on surgery date today but it looks like the 10th or 17th of March depending on scheduling of a little boy with a tumor.
One worry, doctor says if my brain dries out too much, (CSF cushion is too little) my brain could sag into my spinal column and that is NOT GOOD! Meningitis is also a risk but really not such a big of risk. So I stay semi-vertical as much as possible and drink a ton of liquids! I'll get back to beading and teaching when this major inconvenience is finally eliminated! Someone! Find a cure, Please! for Intracranial Hypertension! All my science students, past and present - this is a call for action!

   Feb. 2022 my grandparents: Grandpa Fryer at top, then Grandma Fryer followed by Grandpa and Grandma Bowen with their family in the bottom...